How did you find out about scalp cooling?
I had never heard of it before then the Nurse navigator explained it to me when I found out I needed chemo
How was your scalp cooling experience as you progressed through chemotherapy?
I was scared! Was scared of entire thing! Scare of not putting it on correctly scared of it not working. But I am so so so happy I did it!!!! My nurses were unfortunately not highly trained with it, they said I was the first person to use it so my husband helped me with the cap. I loved the cold. Felt great during and after was good too.
How did you want to best be supported? Who did you find the most supportive to you?
My parents, my husband, my son, my family, my friends, my co-workers. The list goes on. I had a HUGE support system! They were all there for me, checked in, visited during chemo treatments my co-workers even made breast cancer scrub caps and wore them every Wednesday when I had treatment! That was huge for me. Just to know they were there meant the world to me
Did you know that access to scalp cooling is changing and that insurance reimbursement for the treatment is now a reality?
My insurance did not help at all and I plan to go to state house and have this covered for more people. Cancer is expensive enough this should be covered! Very proud of NY for being the first state to pass it. Hope all states in the US follow suit
What words of encouragement would you offer to anyone contemplating scalp cooling?
Do not be scared! Do not give up! You got this! Be gentle with yourself and your hair. I would also tell people to look into the statistics for their type of chemo to see how much it might help before spending the money. Not cheap but for me it was worth it
Treatment Images
